Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.

Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.

Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.

ALS Forums

Communities and peer support · By ALS Forums (volunteer-run) (opens in a new tab)

A long-running, independent, volunteer-moderated forum for people with ALS and their families, with sections for diagnosis, daily living, carers and loss.

Community run

↗ Open ALS Forums

One of the oldest ALS communities online, run by volunteers and independent of any organisation or company. Members share what has worked, answer questions about equipment and symptoms from experience, and support each other through diagnosis and bereavement. It is moderated, but what you read is other people's experience, not clinical advice. Free to read; register to post.

Who it is for: People with ALS/MND, Carers and family, Children and young people
Where it works: Anywhere
How you reach it: Website

Related resources

Where Compass mentions this