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EverythingALS studies

Registries and data contribution · By EverythingALS (Peter Cohen Foundation) (opens in a new tab)

Remote studies you can join from home: a speech and video biomarker study, a gene carrier study, and a trial-readiness study that builds your digital baseline.

↗ Open EverythingALS studies on EverythingALS (Peter Cohen Foundation)’s site (opens in a new tab)

EverythingALS runs short, focused studies that you take part in from home over a few months. The speech study records short sessions to develop measures of change in speech and face movement; the gene carrier study looks for the earliest changes in people from ALS and FTD families; the trial-readiness study builds a baseline so you are ready if a trial opens. Data are shared openly with researchers. The organisation is American and most partners are US-based, but participation is online.

Who it is for
People with ALS/MND, Gene carriers, Carers and family
Where it works
Anywhere
How you reach it
Website, iPhone and iPad, Android

Also from EverythingALS (Peter Cohen Foundation)

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