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Practical Guide to ALS

Care guides and helplines · By Guide to ALS (independent, family-run) (opens in a new tab)

A practical guide written from the experience of a parent and full-time caregiver: equipment, everyday care, medical topics and legal considerations.

  • Community run
↗ Open Practical Guide to ALS on Guide to ALS (independent, family-run)’s site (opens in a new tab)

Written by a family member who became a full-time caregiver, this site collects what they learned along the way: which equipment helped and when, how everyday care was managed, the medical topics that came up, and the legal and financial matters that had to be dealt with. It is experience-based guidance from one family, not professionally reviewed medical or legal advice, and some of the legal, healthcare and product detail is specific to the United States.

Who it is for
People with ALS/MND, Carers and family
Where it works
Anywhere · Some legal, healthcare and product detail is specific to the United States.
How you reach it
Website
Worth knowing
Some legal, healthcare and product detail is specific to the United States.
  • Your ALS GuideDoes a similar job. Both are independent US guides; Your ALS Guide is broader on services

Where Compass mentions this