Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.

Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.

Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.

How Compass is developedGive feedback

Treatments and research

Registry

An organised record of people with a condition who have agreed to be contacted or counted.

What it means

Registries do two things. They show how many people are affected and where, which shapes services and funding, and they let researchers reach people who might want to join a study. What is collected and who can see it varies, and is set out before joining.

Why you might hear it

  • Joining one is often suggested as a low-effort way to help research.
  • Trial teams frequently recruit through them.

People who may help

Where Compass goes into this

About this explanation

These are plain explanations of words you may come across, not advice about your own situation. Where a word matters to a decision, the question pages go into it properly, and your own team is the place to take it.