Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.
Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.
Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.
Investigations
Long-form deep dives into things people with ALS/MND are discussing or trying.
Some things get talked about in the ALS/MND community long before anyone has properly tested them: devices, medicines used off label, supplements, diets, and other approaches. An investigation gathers what is actually known about one of them in a single place.
Each one sets out what has been studied and in whom, what is only plausible, what might carry risk, and what nobody has established yet. Appearing here is not a recommendation. It is not a warning either. It means enough people are asking about something that the evidence is worth laying out plainly.
These are not clinical guidance, and they are not reviewed by clinicians. If something here matters to you, it belongs in a conversation with your own care team.
Published so far
Medical device
Pulsed electromagnetic field therapy (PEMF) in ALS/MND
Is there good reason to think a pulsed electromagnetic field (PEMF) device you can buy will change the course of ALS/MND, or help with its symptoms?
At present there is no reliable evidence that a consumer PEMF device slows or reverses ALS/MND. Evidence that PEMF relieves pain or fatigue in other conditions is mixed and condition specific, and its effects on ALS/MND symptoms have not been adequately tested.
No reliable evidence