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'All in the same boat'? Patient and carer attitudes to peer support and social comparison in Motor Neurone Disease (MND)
Part of Social Science & Medicine
Independent publisher
This describes who publishes a source, not how reliable it is.
Open source (opens in a new tab)Link checked August 2026
About this source
A UK interview study of what people with MND and their carers actually think about peer support, including why some value it and why others stay away.
Where this source is used
Used in 3 places across 1 domain.
Questions
Support
Peer Support
- What if peer support feels difficult, or is not for me?
Supports this
“Meeting people whose ALS/MND has progressed further can raise fear about a person's own future.”
Found both sides of this. Seeing others coping well gave people hope, but most were also shocked and saddened by seeing others with the condition, and some stayed away from groups precisely to avoid seeing what might lie ahead for them.
Choosing isolation can be a deliberate defensive strategy, to protect oneself from witnessing one's possible future.
Abstract - What if peer support feels difficult, or is not for me?
Supports this
“Peer support does not suit everyone, and how much a person wants it can change over the course of the illness.”
An interview study with 48 people with MND and 22 carers. It found that some people deliberately keep away from peer support, and that how involved people are shifts over time as their needs and fears change.
Levels of involvement may change over time as people struggle with their changing needs and fears.
Abstract - What is peer support, and how can connecting with others help?
Qualifies this
“Seeing how other people are coping with ALS/MND can be encouraging.”
An interview study with people who have MND and their carers. It found that seeing others coping well can give hope, but also that most people are shocked and saddened by seeing others with the condition, so encouragement is only one side of what happens.
However, most people are also shocked and saddened by seeing others with the condition.
Abstract
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