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NEALS PT/OT guide
Part of NEALS
Open source (opens in a new tab)Link checked August 2026
About this source
NEALS’s practical guide.
Where this source is used
Used in 40 places across 3 domains.
People who may help
Therapies and allied health
- Occupational therapist
What this person does, and where they sit in a team
- Physiotherapist
What this person does, and where they sit in a team
Questions
Support
Caregiver Coordination
- How can a caregiver help with transfers safely, including using a hoist or sling?
Used across the whole answer
Lifestyle
Energy Management
- How can I make daily tasks easier and save energy?
Used across the whole answer
- How can I plan and pace my activities?
Used across the whole answer
- Who can help me manage my energy?
Used across the whole answer
- Who can help me manage my energy?
Supports this
“Both occupational therapists and physiotherapists work on energy conservation in ALS/MND.”
Places energy conservation with both professions. It describes occupational therapists as the specialists who work with you on taking part in daily activities such as bathing, dressing, cooking, eating, cleaning and working, and it lists activity modification and energy conservation strategies under what a physical therapist or occupational therapist may put in a treatment plan.
Daily Living Tools
- How do I find the right tools for me?
Used across the whole answer
- What tools can help with everyday activities?
Used across the whole answer
- What tools can help with everyday activities?
Supports this
“An occupational therapist can work out which aid suits your particular difficulty, instead of you choosing by trial and error.”
Lists recommendations for equipment and adaptive devices among the things a physical or occupational therapy visit covers, and says its own list of aids is a very small sample of what is available, so any change in function is worth raising with them.
Mobility
Physiotherapy
- How can I reduce the risk of falls at home?
Used across the whole answer
- How can I reduce the risk of falls at home?
Supports this
“Falls prevention should start early, before falls become frequent.”
A physical and occupational therapy guide for ALS which puts prevention first, then gives a room-by-room list covering the same ground as the answer: removing or securing rugs, minimising clutter in walking paths, keeping lighting adequate, marking or removing thresholds, grab bars by the shower and toilet, and supportive non-slip footwear.
In the case of falling, prevention is the best treatment.
FALL PREVENTION - How can I tell if I am doing too much exercise?
Supports this
“Fatigue that lasts more than about 30 to 60 minutes after exercise is a sign of having done too much.”
A physical and occupational therapy guide for ALS which gives the same window: exercise should be pitched so that after resting for 30 minutes to an hour you feel fully recovered and could do it again. Not quoted because the two-column PDF splits the sentence across columns.
- What should I ask at my first physiotherapy appointment?
Used across the whole answer
- When should I think about walking aids, braces, wheelchairs, or home adaptations?
Used across the whole answer
Mobility Planning
- How do I keep moving safely and stay independent?
Supports this
“A walking aid brought in early, rather than after things get difficult, can help prevent falls and injuries.”
Says the same from the therapist's side: tripping over your feet, or persistent difficulty with walking and balance, is the point at which an assistive device or a brace may be needed for stability.
- How do I keep moving safely and stay independent?
Supports this
“Keeping walking routes clear and lighting them well is one of the practical things that reduces the risk of falling at home.”
Its fall prevention section is built on these two. It says vision helps you keep your balance, so lighting should be adequate and especially so at night, with night lights in bedrooms, hallways and bathrooms. Under floors it asks for clutter kept out of walking paths, scatter rugs removed or taped down, and cords across the floor taped down.
In the case of falling, prevention is the best treatment.
Fall prevention - How do I keep moving safely and stay independent?
Supports this
“Staying gently active is worth doing, and the level that suits one person will not suit another.”
Sets the comfortable limit in plain terms. It says not to exercise to the point of severe fatigue or soreness, and offers a rule of thumb: after thirty minutes to an hour of rest you should feel back to your usual energy, and if you do not, you did too much.
- What mobility aids and equipment might help, and when?
Adds context
“Assessing and anticipating what a person needs for daily living and mobility is the job of the healthcare professionals and social care practitioners involved in their care, a group that will include physiotherapists and occupational therapists.”
Written by physical and occupational therapists working in ALS. It describes an evaluation leading to a plan, producing recommendations for equipment, adaptive devices, orthoses, wheelchairs and seating, and says the therapists help work out which devices are safe. This is the United States route, where therapists lead this work, so it shows the role rather than how it is arranged elsewhere.
- What mobility aids and equipment might help, and when?
Qualifies this
“It works better to have mobility equipment in place a little before it becomes essential than to arrange it once it is.”
Adds a limit that matters for the larger items. Where a wheelchair is funded through insurance, the funder usually pays for one in five years, so acting early on the wrong chair can use up the entitlement. It advises talking the options over with the therapists before ordering. This is a funding rule, not a clinical one, so it will not apply everywhere.
Insurance typically pays for only one wheelchair in a five year time period.
Alternatives to walking
Resources
Lifestyle
- Daily Living Tools
Further reading
A guide to what occupational and physical therapists do, so you know who to ask for an assessment and help choosing daily-living aids.
- Energy Management
Further reading
A guide to what physical and occupational therapists do, so you know who to ask for help with pacing, positioning, and saving energy.
Energy Management
- How can I make daily tasks easier and save energy?
Further reading
Making everyday tasks easier and less tiring
- How can I plan and pace my activities?
Further reading
Occupational therapy guidance on pacing and planning
- Who can help me manage my energy?
Further reading
How OT and PT help with energy management
Daily Living Tools
- How do I find the right tools for me?
Further reading
Matching daily living aids to your needs
- What tools can help with everyday activities?
Further reading
Daily living aids across activities
Support
- Caregiver Coordination
Further reading
Physical and occupational therapy tips for everyday tasks, positioning, and making daily care easier at home.
Caregiver Coordination
- How can a caregiver help with transfers safely, including using a hoist or sling?
Further reading
A physical and occupational therapy guide that covers safe movement and equipment
Mobility
- Home Modifications
Further reading
A guide to what physical and occupational therapists do, so you know who assesses your home and how to work with them.
- Mobility Planning
Further reading
Guidance from physical and occupational therapists on the aids and approaches that help you stay safe and active day to day.
- Physiotherapy
Further reading
A readable guide to physical and occupational therapy in ALS/MND. It covers what they do, exercises, equipment, and staying as independent as possible.
- Vehicle Adaptations
Further reading
Points you to the occupational and physical therapists who can assess your driving and recommend vehicle adaptations.
- Wheelchair Planning
Further reading
A physical and occupational therapy guide that explains how an assessment works and how therapists help match equipment and seating to you.
Physiotherapy
- How can caregivers safely help with movement and exercises?
Further reading
Practical guide for therapy, equipment, and caregiver support.
- How can I reduce the risk of falls at home?
Further reading
Practical guide to physical and occupational therapy in ALS.
- How can positioning help with comfort, breathing, and pain?
Further reading
Practical guide covering mobility, positioning, equipment, and daily function.
- How often should my physiotherapy plan be reviewed?
Further reading
Practical guide to therapy planning, equipment, and home safety.
- What should I ask at my first physiotherapy appointment?
Further reading
Practical PT/OT guide covering goals, exercise, equipment, and home safety
- When should I think about walking aids, braces, wheelchairs, or home adaptations?
Further reading
Practical PT/OT guidance on equipment and home safety.
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