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ALS Support Groups
Part of Your ALS Guide
USIndependent publisher
This describes who publishes a source, not how reliable it is.
Open source (opens in a new tab)Link checked August 2026
About this source
A patient-facing page on ALS support groups: what happens in them, what people get out of them, that they do not suit everyone, and how to find in-person and online ones.
Where this source is used
Used in 4 places across 1 domain.
Questions
Support
Peer Support
- How do I find peer support that suits me?
Supports this
“A local ALS/MND association runs or knows the support groups and online communities available in your area.”
Tells readers to go to their local ALS organisation to find out what support groups exist near them, in person and online, and lists association-run online groups that can be joined from anywhere.
Ask your local ALS organization about in-person and online support groups in your area.
ALS Support Groups - What if peer support feels difficult, or is not for me?
Adds context
“Peer support does not suit everyone, and how much a person wants it can change over the course of the illness.”
A patient guide that says plainly that support groups do not suit everyone, while still suggesting people try one before deciding. It is practical guidance rather than the evidence for the statement.
Support groups are not for everyone, but we encourage you to attend at least once and see if it is for you.
ALS Support Groups - What is peer support, and how can connecting with others help?
Supports this
“Being among people who already understand the condition can reduce the feeling of being alone with it.”
Describes an ALS support group as a chance to be with people who understand what you are going through day to day, and says this helps you see that you are not alone.
They can help give you a new perspective on your situation and realize you are not alone.
ALS Support Groups - What kinds of peer and community support are there?
Adds context
“ALS/MND support groups run both in person and online, and different groups are aimed at the person with the condition, at caregivers, or at families.”
Lists real examples of audience-specific and topic-specific online groups, which shows what the split between audiences looks like in practice. The organisations named are United States based, so they are examples rather than a global picture.
ALS Network hosts a variety of free online support groups for specific audiences and topics (caregivers/loved ones, veterans, trach and vent, LGBTQIA+, bereavement, in Spanish, etc).
ALS Support Groups
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