Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.

Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.

Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.

How Compass is developedGive feedback

A C9orf72-linked family showed atypical primary lateral sclerosis features

Original source

Atypical features including acquired oculomotor apraxia in C9orf72-associated familial primary lateral sclerosis.J Neuromuscul Dis · 26 September 2025 (opens in a new tab)

Compass summarised this from the study's abstract.

Study details

Study type
Case report
Studied in
Human

Related topics

A case report described two brothers with a C9orf72 repeat expansion and primary lateral sclerosis features. One developed acquired ocular motor apraxia, rapid progression and laryngeal dystonia before dying. The authors say the findings broaden the reported clinical range of C9orf72-associated disease and overlap with amyotrophic lateral sclerosis and frontotemporal dementia.

Why this matters

The report may help clinicians recognise that C9orf72-associated primary lateral sclerosis can include prominent eye-movement and other non-motor features. It also supports further study of how primary lateral sclerosis relates to the ALS–frontotemporal dementia spectrum. This single-family report does not establish a treatment change or show that these features are common.

Limitations and context

This was a chart review and case report involving one family and two brothers, not a controlled study. The findings come from a rare clinical presentation and cannot establish how often these features occur or whether C9orf72 mutations generally cause more severe disease. The report does not provide evidence for a specific treatment.

Summarised by Compass 9 August 2026

This summary was generated by AI from the source listed above. It is not medical advice, so read the original source for anything that affects your care.

Bibliographic data from PubMed is courtesy of the U.S. National Library of Medicine. Compass does not reproduce source abstracts and may not reflect the most current record.

Relevant to you?