A UK study is developing a tool to improve care coordination for people with MND
Original source
Co-Designing a Care Coordination Intervention for People With Motor Neuron Disease: Protocol for a Mixed Methods Study. (opens in a new tab)Compass summarised this from the study's abstract.
Study details
- Studied in
- Human
A mixed-methods study is being conducted to understand care coordination in England and Wales and co-design the MND Together tool. The project involves people with motor neuron disease (MND), carers, and health and social care professionals. It began in September 2025 and is scheduled to run until October 2027, followed by a practice pilot.
Why this matters
The project focuses on communication between specialist centres and local community services, which the protocol describes as fragmented and burdensome for people with MND, carers, and professionals. If the tool is successfully developed and later shown to work in practice, it could support more coordinated care closer to people's homes. It does not currently change treatment or establish that care will improve.
Limitations and context
This is a study protocol, not a report of completed results. The project is ongoing, recruitment has so far involved 23 people with MND and carers and 16 health and social care professionals across four of nine sites, and the tool has not yet been developed or tested. The source is a primary research protocol, so its proposed benefits remain to be demonstrated in the planned pilot.