Care & Living Discussion
Fall Prevention Advice, Please - Early in Disease Progression
Relevant to home safety planning and responding when someone falls alone.
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Care & LivingObservational studyHuman
Feeding-tube placement was feasible and safe in people with advanced ALS
Relevant to clinicians assessing RIG safety, survival and multidisciplinary referral
Care & Living Discussion
Bulbar-onset ALS and low oxygen saturation (84%) on NIV.should I be worried
Relevant to families responding to low oxygen readings and respiratory symptoms.
Care & Living Reporting
ALS Nexus 2026: Implantable device decodes patients’ brain signals
Mainly of interest to researchers studying neural decoding and assistive technology
Care & LivingHuman
Virtual care could remain part of neuromuscular care, but more evidence is needed
Relevant to clinicians evaluating telemedicine quality, limitations and digital assessment tools
Care & LivingHuman
Documented end-of-life decisions were linked to more comfort-focused care in a neurological ward
Relevant to clinicians assessing terminal-phase care and documenting goals of care.
Care & LivingHuman
Rural residence was linked to more MAiD referrals in a Canadian ALS clinic study
Relevant to clinicians assessing MAiD requests and discussing NIV within specialist palliative care.
Care & LivingHuman
U.S. registry study links multidisciplinary ALS clinic attendance with more specialized care
Relevant to clinicians evaluating multidisciplinary care delivery and utilization outcomes
Care & LivingHuman
Hospital palliative care referrals for ALS often came late in the disease course
Relevant to timely palliative-care referral and complex decision-making for hospitalized patients
Care & Living Reporting
A hopeful outlook may help combat mental health distress in ALS
Relevant to coping with mental health distress while living with ALS
Care & LivingHuman
Speech severity affects how much intelligibility must change to indicate a real difference
Relevant to clinicians assessing dysarthria outcomes and meaningful communication change
Care & LivingCommentary
A letter calls for spiritual care to be considered in professionals’ emotional experiences of ALS care
Relevant to professionals considering spiritual care and emotional support in ALS practice.
Care & LivingHuman
A two-center study identified factors linked to poorer survival after gastrostomy in ALS
Relevant to clinicians assessing respiratory function and timing before gastrostomy.
Care & Living
A study reports longer hospital stays and more long-term complications after emergency tracheostomy in ALS
Relevant to counselling and managing emergency airway decisions in ALS
Care & LivingHuman
A hospital study found obstructive sleep apnea in many patients with neuromuscular disease
Relevant to clinicians evaluating home polygraphy and non-invasive ventilation needs
Care & LivingCommentary
Physical activity in ALS: friend or foe?
Relevant to clinicians advising on exercise and physical activity in ALS
Care & LivingHuman
Advance care planning was documented for about half of Italian ALS patients
Relevant to integrating advance care planning into ALS care, especially before cognitive decline.
Care & LivingHuman
Falls were common among ambulatory people with ALS in a six-month study
Relevant to clinical fall-risk assessment and rehabilitation planning.
Care & LivingHuman
Amyotrophic Lateral Sclerosis
Relevant to understanding diagnosis, treatment and prognosis
Care & Living Discussion
iOS device control/holder when losing hand function
Relevant to people seeking ways to control or hold an iOS device as hand function changes
Care & Living Discussion
Free assisted communication software for people with locked-in syndrome
Relevant to people needing communication support when movement and speech are severely limited
Care & LivingHuman
Australian survey identifies gaps and variation in motor neurone disease care
Directly informs Australian guideline priorities and identifies clinical practice uncertainties.
Care & Living Discussion
Resting position for dad
Relevant to caregivers helping a person with ALS find safe, comfortable positioning.
Care & LivingHuman
A cohort study examined survival after acute respiratory failure in people with chronic neurological diseases
Relevant to clinicians managing ICU discharge, home ventilation and nutritional planning
Care & LivingHuman
A review recommends therapeutic exercise as part of physiotherapy for ALS
Relevant to clinicians selecting evidence-based physiotherapy interventions for ALS
Care & LivingHumanMainly relevant to the United Kingdom.
A UK study is developing a tool to improve care coordination for people with MND
Relevant to professionals involved in multidisciplinary care coordination.
Care & LivingHuman
A German multicenter study links depressive symptoms in ALS with poorer health and support
Relevant to integrating depression screening and psychosocial care into ALS management
Care & Living Discussion
Any good mug recommendations for mom with ALS and hand and grip weakness?
Relevant to choosing safer, easier-to-use mugs for a parent with ALS
Care & LivingHuman
A P300 brain-computer interface used a local language model to improve spelling performance
Mainly of interest to researchers studying BCI decoding, language models, and ALS communication
Care & LivingHuman
An 18-year study describes changing experiences among three people with ALS using invasive ventilation
Relevant to clinicians developing holistic, trajectory-informed care for people using invasive ventilation.
Care & LivingReviewHumanAnimal
A review outlines how texture-modified foods could support swallowing and nutrition in ALS
Relevant to caregivers preparing safer, energy-dense texture-modified foods
Care & LivingReviewHuman
Review identifies a communication transition in invasively ventilated ALS
Relevant to communication assessment, goal-concordant care and timing of treatment discussions.
Care & LivingHuman
An Australian study identified barriers to non-invasive ventilation uptake in motor neurone disease
Relevant to clinicians improving NIV discussions, referral pathways and equitable uptake.
Care & LivingHuman
A clinic review found financial concerns in two-thirds of people with ALS
Relevant to clinicians improving financial screening, documentation and social-work referral.
Care & LivingHuman
A study used homecare records to model institutionalisation risk for people with ALS
Relevant to homecare providers assessing clinical decline and care-setting needs
Care & LivingHuman
A Japanese voice assessment tool was found reliable in people with voice disorders
Relevant to clinicians assessing voice-related activity limitations and participation restrictions in Japanese-speaking patients.
Care & LivingHuman
A Swedish study finds different survival times across ventilation pathways in ALS
Relevant to clinicians managing ventilation timing, airway decisions and unplanned initiation risk.
Care & LivingHuman
Cervical spinal stimulation was linked to stronger cough scores in a six-person case series
Relevant to clinicians evaluating exploratory cervical stimulation approaches for airway protection.
Care & Living Reporting
Researcher honored for AI brain implant that helps restore speech in ALS
Relevant to people interested in communication technology that may restore speech
Care & LivingCase reportHuman
A case report describes ALS first presenting with acute hypercapnic respiratory failure
Relevant to clinicians evaluating unexplained hypercapnic respiratory failure and initiating multidisciplinary ALS care.
Care & LivingObservational studyHuman
Sexual activity in motor neuron disease was linked more to mood and cognition than motor function
Relevant to integrating sexuality assessment into multidisciplinary clinical care.
Care & LivingHuman
Researchers describe a multilingual eye-sign communication system for augmentative and alternative communication
Mainly of interest to researchers studying eye-tracking AAC and predictive interfaces
Care & Living Reporting
Self-balancing robotic suit helps ALS patients practice walking
Relevant to people exploring mobility assistance and walking practice.
Care & LivingReviewHuman
A review examines brain-computer interfaces for assessing awareness when motor responses are unreliable
Mainly of interest to researchers developing multimodal BCI and AI methods for neurodegenerative disease.
Care & Living Reporting
Co-designed robotic glove gives a man with severe ALS his grip back
Relevant to people seeking assistive technology for lost hand function
Care & Living DiscussionUpdated
Brain device may one day help people with ALS communicate
Relevant to people considering brain-computer communication options
Care & LivingCase reportHuman
A case report describes intensive care nursing for a person with advanced ALS and epilepsy
Relevant to clinicians managing respiratory, nutritional and nursing care for ALS with epilepsy
Care & LivingCase report
A case report describes NMES-assisted jaw rehabilitation for trismus in ALS
Relevant to clinicians considering non-invasive management of spasticity-related trismus
Care & LivingHuman
At-home vital capacity measurements closely matched clinic measurements in an ALS trial
Relevant to clinicians evaluating home vital-capacity monitoring for ALS care and trials
Care & Living Reporting
Treatment burden affects nearly 70% of ALS patients in Italian study
Relevant to people weighing the practical burden of ALS treatment.
Care & LivingHuman
A soft robotic glove enabled grasping in a person with severe ALS-related hand impairment
Relevant to people seeking assistive technology for grasping, feeding and hand independence
Care & Living
Better conversations with MND
Relevant to practical ways families can support communication changes.
Care & LivingSystematic reviewHuman
A review finds limited emotional support for ALS healthcare professionals
Relevant to staff support, supervision, debriefing and emotional care practice.
Care & LivingSystematic reviewHuman
A US expert group published standards for ALS home care and equipment
Relevant to implementing multidisciplinary home-care and durable-equipment standards.
Care & Living
A case report describes reversible dropped head syndrome linked to olanzapine-associated cervical dystonia
Relevant to clinicians assessing dropped head syndrome and olanzapine-associated cervical dystonia in the FTD-ALS spectrum.
Care & LivingReviewHuman
A review recommends routine sleep-disorder screening in people with neurodegenerative diseases
Relevant to clinicians screening for and managing sleep disorders in neurodegenerative disease.
Care & LivingSystematic reviewHuman
A review finds few tailored support interventions for families affected by parental ALS
Relevant to families planning psychosocial and parenting support during progressive illness.
Care & LivingHuman
A new questionnaire measures how muscle cramps affect daily life
Relevant to clinicians assessing cramp burden with a validated patient-reported measure
Care & LivingObservational studyHuman
A Spanish study linked multidisciplinary ALS care with more cognitive assessments and recorded advance directives
Relevant to clinicians evaluating multidisciplinary models, cognition and advance care planning.
Care & LivingReviewHuman
A review finds sexual health is often overlooked in ALS and other neuromuscular diseases
Relevant to clinicians considering sexual health assessment as part of routine neuromuscular care.
Care & LivingReviewHuman
A practical guide outlines telehealth conversations about serious illness in ALS
Relevant to clinicians conducting neuropalliative conversations remotely, including with speech impairment
Care & LivingSystematic reviewHuman
A review finds poor subjective sleep quality is common in ALS
Relevant to clinicians deciding whether to screen and manage sleep disturbances systematically.
Care & LivingHuman
Interactive speech improved vowel intelligibility in people with ALS-related dysarthria
Relevant to speech-language professionals considering interactive and clear-speech strategies.
Care & LivingSystematic reviewHuman
A review finds communication support needs often arise within one to five years of ALS diagnosis
Relevant to timing and monitoring of communication and assistive technology interventions
Care & Living
Can Functional Medicine support those living with ALS/MND?
Relevant to people considering nutrition-based symptom and wellbeing support
Care & LivingHuman
People with motor neurone disease reported that power wheelchairs supported participation and psychological health
Relevant to clinicians making rehabilitation, wheelchair prescription, and funding recommendations.
Care & Living
Thinking and behaviour changes in MND
Relevant to clinicians assessing cognition, behaviour and possible survival implications
Care & Living
Improving care and quality of life in MND
Relevant to cognitive screening, communication technology and quality-of-life support
Care & LivingHuman
A brain-computer interface decoded Mandarin syllables in real time
Mainly of interest to researchers studying neural speech decoding and brain-computer interfaces
Care & LivingHuman
Survey finds wide variation in how speech and swallowing problems are managed in ALS
Relevant to clinicians comparing bulbar assessment practices and identifying gaps in standardized care
Care & Living Compass
Ketogenic diet and ALS: my take, not a prescription
Relevant to people considering dietary changes, weight maintenance, and fasting alongside ALS.
Care & Living Compass
I can’t cure ALS, but these things help me fight it
Relevant to people seeking practical ways to manage cramps, stiffness, anxiety, speech strain and daily function.
Care & LivingHuman
A Brazilian study tracked changes in functioning over 16 months in people with ALS
Relevant to clinicians assessing longitudinal function and targeting multidisciplinary rehabilitation.
Care & Living
Understanding the ‘hidden middle’ of cognitive change in MND
Relevant to clinicians assessing cognitive change and supporting treatment decision-making
Care & LivingHuman
Focus groups identify priorities for assistive devices in ALS
Relevant to choosing upper-limb assistive devices that preserve independence and hobbies
Care & LivingHuman
A small study found a dry-sensor EMG switch feasible for assistive technology access
Relevant to clinicians assessing EMG-based access, usability barriers and fatigue.
Care & Living
Improving Care at Home: A New Study into Complex Homecare in MND (CHiMND)
Relevant to families coordinating skilled homecare and respite support
Care & LivingHuman
Several clinical features were associated with psychological distress in people with ALS
Relevant to clinicians assessing psychological distress alongside motor, bulbar and sleep-related symptoms.
Care & LivingCase reportHuman
A case report compares compassionate ventilator release in two neuromuscular disease patients
Relevant to clinicians managing dyspnea and goals-of-care discussions when ventilator weaning is not possible.
Care & LivingHuman
Researchers developed and piloted a survey about supportive care in ALS
Relevant to clinicians evaluating person-centred ALS supportive and palliative care.
Care & LivingHuman
A study found distinct swallowing differences in people with ALS after accounting for age
Relevant to clinicians interpreting videofluoroscopic swallowing findings in ALS
Care & LivingHuman
A study found that the ECAS may detect early cognitive impairment in ALS better than the MMSE
Relevant to clinicians choosing and interpreting cognitive screening tools in ALS
Care & LivingHuman
A study found varied palliative care needs among people with ALS and their caregivers
Relevant to clinicians deciding when and how to integrate individualized palliative care consultations
Care & Living
Using brain imaging to assess appetite control in people with MND
Relevant to families supporting nutrition and monitoring unintentional weight loss.
Care & Living
Using body measurements to better monitor weight loss in people with MND
Relevant to clinicians assessing nutritional status when weighing is difficult
Care & Living
Overcoming concerns when deciding to have a feeding tube
Relevant to caregivers supporting nutrition decisions and managing stress around tube feeding.
Care & Living
Feeding tube placement and monitoring weight loss in MND
Relevant to people considering feeding tubes and monitoring nutrition after placement
Care & LivingReviewHuman
A review examines EEG brain-computer interfaces for advanced ALS
Mainly of interest to researchers comparing EEG features and machine-learning methods for ALS BCIs
Care & Living
Vowel testing may help assess speech impairment in people with ALS
Relevant to clinicians evaluating dysarthria severity and speech intelligibility.
Care & Living
How can technology and telemedicine play a role in MND care and research?
Mainly of interest to researchers developing digital biomarkers and remote trial methods
Care & LivingHuman
A study identified barriers and enablers affecting assistive technology use in motor neurone disease
Relevant to clinicians improving assistive technology prescription, communication and implementation
Care & LivingReviewHuman
A review calls for routine palliative care in motor neuron disease
Relevant to integrating palliative care screening and specialist collaboration into neurological practice.
Care & LivingClinical trialHuman
Respiratory strength training improved some breathing measures in early ALS
Relevant to clinicians assessing respiratory rehabilitation and airway-clearance interventions.
Care & LivingHuman
People with ALS had lower maximum tongue pressure than comparison groups
Relevant to clinical assessment of lingual pressure and dysphagia in ALS
Care & LivingHuman
A portable cough meter matched research equipment in a study of 109 people with ALS
Relevant to clinicians selecting validated portable cough-flow measurement tools.
From Curalysis
- Clinical trials need to leave the clinic2 months ago
- There’s No Map for This5 months ago
- On the Inside of a Clinical Trial7 months ago
Summarised by Compass using AI from the source material. These are not medical advice. Always read the original source.