ReportingHighly relevant to this reader view.
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Trials & Treatments
All Trials & Treatments stories- HumanMouseSomewhat relevant to this reader view.
JP1 improved movement and survival in ALS model mice by targeting oxidative stress and autophagy
- ReportingHighly relevant to this reader view.
Tiziana Life Sciences to present Phase 2a BANYAN trial data at ALS Nexus 2026
- ReviewHumanAnimalHighly relevant to this reader view.
Review outlines why ALS trials fail and how more personalised treatment could help
- ReviewHumanAnimalHighly relevant to this reader view.
Mesenchymal stem cell treatments appear generally safe, but benefits in ALS remain uncertain
- HumanHighly relevant to this reader view.
A Canterbury study found inconsistent riluzole prescribing and monitoring in ALS
- Highly relevant to this reader view.
A severe hypersensitivity reaction was reported during tofersen therapy in ALS
- HumanMouseUpdatedHighly relevant to this reader view.
ALS Untangled does not recommend ivermectin for ALS
- RecruitingPhase 1/2UpdatedSomewhat relevant to this reader view.
Phase 1/2 trial of TRCN-1023 opens to recruitment
- Results postedPhase 1UpdatedHighly relevant to this reader view.
Results posted for phase 1 trial of Autologous T-regulatory lymphocytes
Research
All Research stories- HumanHighly relevant to this reader view.
Study finds racial and ethnic differences in ALS progression and survival among U.S. Veterans
- HumanSomewhat relevant to this reader view.
C9orf72 ALS study finds little difference in cognition or behaviour, except visuospatial skills
- HumanHighly relevant to this reader view.
A German registry study found that 12% of people with ALS lived at least 10 years after symptoms began
- HumanSomewhat relevant to this reader view.
ATXN2-related disease may sometimes follow a recessive inheritance pattern
- HumanSomewhat relevant to this reader view.
SIGMAR1 variants linked to a slowly progressing inherited motor neuropathy, not ALS
- HumanHighly relevant to this reader view.
ALS linked to C9orf72 repeat expansion showed greater difficulty interpreting thoughts and emotions
- ReviewHumanAnimalSomewhat relevant to this reader view.
A review outlines how immune responses might guide more precise ALS treatments
- HumanSomewhat relevant to this reader view.
A FUS gene variant was linked to tremor and movement symptoms in a young adult with motor neuron disease
- Systematic reviewHumanHighly relevant to this reader view.
Gold Coast criteria may help diagnose ALS earlier, but mimic conditions still need to be ruled out
- HumanHighly relevant to this reader view.
Nutritional vulnerability in ALS was linked to healthcare setting in a study from Portugal
Care & Living
All Care & Living stories- Observational studyHumanHighly relevant to this reader view.
Feeding-tube placement was feasible and safe in people with advanced ALS
- HumanHighly relevant to this reader view.
Virtual care could remain part of neuromuscular care, but more evidence is needed
- HumanHighly relevant to this reader view.
Documented end-of-life decisions were linked to more comfort-focused care in a neurological ward
- HumanHighly relevant to this reader view.
Rural residence was linked to more MAiD referrals in a Canadian ALS clinic study
- HumanHighly relevant to this reader view.
U.S. registry study links multidisciplinary ALS clinic attendance with more specialized care
- HumanHighly relevant to this reader view.
Hospital palliative care referrals for ALS often came late in the disease course
- HumanHighly relevant to this reader view.
A two-center study identified factors linked to poorer survival after gastrostomy in ALS
- Highly relevant to this reader view.
A study reports longer hospital stays and more long-term complications after emergency tracheostomy in ALS
- HumanHighly relevant to this reader view.
Advance care planning was documented for about half of Italian ALS patients
- HumanHighly relevant to this reader view.
Falls were common among ambulatory people with ALS in a six-month study
Community & Public Life
All Community & Public Life stories- AdvocacyBackground to this reader view.
The NIH NeuroBioBank (NBB) is a federated program supporting seven brain banks across the United States.
- News & Culture ReportingBackground to this reader view.
'Pretty remarkable' man living with MND for 29 years after diagnosis
- Advocacy ReportingMainly relevant to England.Background to this reader view.
Terminally ill campaigner’s urgent message to Andy Burnham
- AdvocacyBackground to this reader view.
Meet Beth: Introducing our new Research Engagement and Involvement Manager
- News & Culture ReportingUpdatedBackground to this reader view.
Sandra Bullock speaks publicly about partner Bryan Randall’s private ALS battle
- AdvocacyMainly relevant to the United Kingdom.Somewhat relevant to this reader view.
Standing alongside families through every stage of MND
- Community & Stories DiscussionSomewhat relevant to this reader view.
Neglect in My Mother's ALS Care, Family Denial, and Caregiver Burnout – Need Perspective & Advice
- AdvocacyHumanSomewhat relevant to this reader view.
Assisted living regulations were linked to higher hospice quality ratings
- Advocacy ReportingMainly relevant to the United States.Highly relevant to this reader view.
House passes bill to renew federal law for ALS research and care
- AdvocacyCommentaryHumanHighly relevant to this reader view.
A journal article warns that consumer AI can misdiagnose ALS
From Curalysis
- Clinical trials need to leave the clinic2 months ago
- There’s No Map for This5 months ago
- On the Inside of a Clinical Trial7 months ago
Summarised by Compass using AI from the source material. These are not medical advice. Always read the original source.