Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.

Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.

Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.

How Compass is developedGive feedback

Navigate ALS/MND

Compass is being built to help people navigate ALS/MND, turn scattered information into a practical plan, and organise the many questions and decisions that can arise as needs change.

When we first shared the idea with the community, one message came through repeatedly: the information is out there, but knowing what matters now, what may come next, and how it all fits together is much harder.

Compass is our attempt to close that gap. The Curalysis team behind Compass lives with neurological conditions, including ALS/MND and epilepsy, and the project is being shaped by lived experience, community feedback and published evidence. Compass has not been clinically reviewed.

How to use Compass

  1. Set up your profile

    Add a few details about your situation so Compass can put more relevant information first. No login is required, and your profile and plan are stored on this device.

  2. Explore what matters to you

    Browse the domains, cards, questions and resources to find what matters now, what may matter next, and what is worth returning to. Save useful items to My Plan as you go.

  3. Build your plan

    My Plan brings together the questions, steps, cards and resources you save. Organise them around what matters now, what comes next, your next appointment, or things to revisit later.

    Open My Plan
  4. Help shape Compass

    Compass is still being developed, and your feedback helps shape it. Tell us what is missing, difficult to use, inaccessible, or worth adding next, either while browsing or through How to participate.

    How to participate

Medical Care

Breathing

Communication

Mobility

Research & Trials

Lifestyle

Planning

Support