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ALS Clinical Trials and Research

Communities and peer support · By Volunteer moderators on Facebook

A public Facebook group about ALS clinical trials, drug development, research papers, taking part in trials, and what members have experienced.

  • Featured
  • Facebook
  • Community run
↗ Open ALS Clinical Trials and Research on Volunteer moderators on Facebook’s site (opens in a new tab)

A public Facebook group where people with ALS, carers and others follow trials and research together: new studies, drug development news, papers, how to take part, and what members have experienced in a trial. You need a Facebook account to post; the group is public to read. Run by volunteer moderators rather than an organisation. Treat what is posted as other people's reading and experience, not medical or professional advice, and check a study against the registry before acting on it.

Who it is for
People with ALS/MND, Carers and family, Gene carriers
Where it works
Anywhere
How you reach it
Website, iPhone and iPad, Android

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