Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.

Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.

Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.

How Compass is developedGive feedback

ALStogether

Communities and peer support · By ALS Network (opens in a new tab)

A Slack community for people living with ALS and their carers, with channels for general support, clinical trials, genetics, equipment, veterans and more.

  • Featured
  • Slack
  • Community run
↗ Open ALStogether on ALS Network’s site (opens in a new tab)

A programme of ALS Network that uses Slack, the workplace chat tool, to run a moderated community. Channels are organised by topic, so you can follow the conversations that matter to you: general support, clinical trials, genetics, equipment, veterans and others. You need a free Slack account and to be admitted to the workspace. Run by a California organisation and open to people anywhere. What members share is their own experience, not medical or professional advice.

Who it is for
People with ALS/MND, Carers and family
Where it works
Anywhere
How you reach it
Website, iPhone and iPad, Android
  • ALS ForumsDoes a similar job. A forum rather than a chat workspace; both are peer communities.
  • ALS Clinical Trials and ResearchWorks alongside. The Facebook group is public and trial-focused; this has a trials channel inside a broader community.

Where Compass mentions this