Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.

Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.

Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.

How Compass is developedGive feedback

Huntingtin expansions were found in a small number of patients with FTD or ALS syndromes

Original source

Pathogenic Huntingtin Repeat Expansions in Patients with Frontotemporal Dementia and Amyotrophic Lateral Sclerosis.Neuron · 26 November 2020 (opens in a new tab)

Compass summarised this from the study's abstract.

Study details

Studied in
Human

Related topics

Pathogenic expansions in the huntingtin gene were found in three of 2,442 patients with frontotemporal dementia (FTD) or amyotrophic lateral sclerosis (ALS) syndromes. They were not found in the comparison groups and the finding was replicated in an independent group of 3,674 FTD/ALS patients. Two patients whose brains were examined had ALS/FTD-type TDP-43 pathology but no characteristic Huntington’s disease striatal atrophy.

Why this matters

The findings suggest that huntingtin repeat expansions may rarely contribute to FTD/ALS syndromes. Genetic testing for these expansions could be considered in some people with FTD/ALS, but this study does not change treatment and does not show that testing benefits patients.

Limitations and context

This was a genetic analysis rather than a treatment study. The expansion was rare, and postmortem findings were available for only two patients. The results concern combined FTD/ALS syndromes and do not establish how often huntingtin expansions occur in ALS alone or how they affect prognosis.

Summarised by Compass 10 August 2026

This summary was generated by AI from the source listed above. It is not medical advice, so read the original source for anything that affects your care.

Bibliographic data from PubMed is courtesy of the U.S. National Library of Medicine. Compass does not reproduce source abstracts and may not reflect the most current record.

Relevant to you?