Compass is still being developed and is effectively in beta. Some content and features may be incomplete, change, or not work as expected.
Content is anchored to trusted sources where available, but Compass has not yet been clinically reviewed. It provides general information rather than medical advice.
Feedback helps us identify gaps, errors, usability problems and opportunities to improve Compass over time.
International Alliance
Part of International Alliance of ALS/MND Associations
Independent publisher
This describes who publishes a source, not how reliable it is.
Open source (opens in a new tab)Link checked August 2026
About this source
International Alliance of ALS/MND Associations’s organisation.
Where this source is used
Used in 38 places across 8 domains.
People who may help
Navigating support
- MND association advisor
What this person does, and where they sit in a team
Questions
Breathing
Non-Invasive Ventilation
- Can I stop using NIV if I change my mind?
Used across the whole answer
- What does using NIV feel like day to day?
Used across the whole answer
- What is Non-Invasive Ventilation (NIV) and how does it work?
Used across the whole answer
- What should I ask my respiratory team about NIV?
Used across the whole answer
Resources
Planning
- Advance Care Planning
Further reading
A global network of ALS and MND associations that helps you find a trusted local organisation for advice on care planning rules where you live.
- Disability Benefits
Further reading
A directory of national ALS and MND associations so you can find a local adviser who knows the benefits and grants available where you live.
- Long-Term Care
Further reading
A directory of national ALS and MND associations around the world who can point you to local care services and funding in your own country.
Research & Trials
- Biomarker Monitoring
Further reading
A global network of ALS/MND associations that points you to research updates and member organisations near you.
- Clinical Trials
Further reading
A worldwide network of ALS and MND associations that can point you to research and trials happening in your country.
- Emerging Therapies
Further reading
The global network of ALS/MND associations, a trustworthy hub for keeping up with developments and finding reputable information wherever you live.
- Genetic Testing
Further reading
A worldwide network of ALS/MND associations that can point you to support and services in your own country.
- Research Registries
Further reading
A global network of ALS and MND associations that can help you find the registry or research programme run in your own country.
Breathing
- Invasive Ventilation
Further reading
A global ALS/MND association network you can use to find trusted information and local support as you think through long-term breathing decisions.
- Non-Invasive Ventilation
Further reading
An overview from the worldwide alliance of ALS/MND associations that helps you understand breathing support options and connect with the association in your country.
- Respiratory Testing
Further reading
A global hub linking to ALS and MND associations worldwide, helpful for finding respiratory information and support relevant to where you live.
- Respiratory Consult
Further reading
A global network of ALS/MND associations that can point you to trusted respiratory information and local support wherever you live.
- Sleep Study
Further reading
Trusted global ALS/MND network you can use to find reliable information and local support around breathing and sleep care.
Non-Invasive Ventilation
- Can I stop using NIV if I change my mind?
Further reading
Overview of ventilation decisions in ALS/MND
- Can NIV help me live longer with ALS/MND?
Further reading
Overview of NIV benefits and respiratory care
- My NIV mask is uncomfortable. What can I do?
Further reading
Breathing support overview
- What does using NIV feel like day to day?
Further reading
Overview of breathing support and what to expect from NIV in ALS/MND
- What is Non-Invasive Ventilation (NIV) and how does it work?
Further reading
Overview of breathing support and NIV in ALS/MND
- What should I ask my respiratory team about NIV?
Further reading
Overview of breathing support and ventilation options in ALS/MND
- What's the difference between a BiPAP machine and a portable ventilator?
Further reading
Breathing support overview
- Why is BiPAP usually recommended instead of CPAP or oxygen for ALS/MND?
Further reading
Overview of ventilation support options
Invasive Ventilation
- What is invasive ventilation, and how is it different from NIV?
Further reading
Overview of respiratory care in ALS/MND and the choices involved
Respiratory Testing
- Why is breathing monitored in ALS/MND, and what changes are we watching for?
Further reading
Overview of how ALS/MND affects breathing and the care involved
Support
- Caregiver Coordination
Further reading
A directory of ALS and MND associations worldwide to help you find caregiver support services near you.
- Mental Health Support
Further reading
A global network of ALS/MND associations that can point you to emotional and psychological support in your own country.
- Peer Support
Further reading
A worldwide directory of ALS and MND associations so you can find a support group, helpline, or community near you wherever you live.
Communication
- Eye-Tracking Devices
Further reading
A global network of ALS/MND associations you can use to find local services and support for getting communication equipment.
- Speech Tech
Further reading
A directory of ALS and MND associations worldwide so you can find local services and communication support near you.
Mobility
- Mobility Planning
Further reading
A way to find the ALS/MND association in your country, which can point you to local services and equipment support.
Medical Care
- Clinic Coordination
Further reading
A directory of ALS/MND associations around the world that can help you find a clinic or team near you wherever you live.
- Palliative Care
Further reading
A global network of ALS/MND associations you can use to find trusted local organisations and support wherever you live.
- Saliva Management
Further reading
A global network of ALS/MND associations that can point you to trusted local information and support for managing symptoms like saliva problems.
Lifestyle
- Swallowing Support
Further reading
A way to find your national ALS/MND association so you can reach a local speech pathologist and swallowing support.
This is an external source. Compass links to it and describes it but does not hold rights over it. Opening it takes you to the publisher’s own site.