Advocacy
The NIH NeuroBioBank (NBB) is a federated program supporting seven brain banks across the United States.
Relevant to researchers interested in the infrastructure supplying donated brain tissue.
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Advocacy ReportingMainly relevant to England.
Terminally ill campaigner’s urgent message to Andy Burnham
Relevant to people following advocacy about terminal illness and public services
Advocacy ReportingMainly relevant to England.
Free event aims to raise funds for motor neurone disease charity
Relevant to people seeking local charity support or community activities
Advocacy
Meet Beth: Introducing our new Research Engagement and Involvement Manager
Relevant to researchers seeking community involvement, inclusive recruitment and collaboration opportunities
Advocacy Reporting
ALS Nexus 2026: It ‘takes us all’ to change the future of ALS
Relevant to people following community efforts and future ALS priorities
AdvocacyMainly relevant to the United Kingdom.
Standing alongside families through every stage of MND
Relevant to families needing guidance on difficult conversations, education, counselling and bereavement support.
Advocacy
Meet Katie, the newest member of the Research Team
Provides background on FUS experiments and points to an emerging MND clinical trial
AdvocacyHuman
Assisted living regulations were linked to higher hospice quality ratings
Relevant to researchers studying hospice outcomes, staffing regulations, and care quality.
Advocacy ReportingMainly relevant to the United States.
House passes bill to renew federal law for ALS research and care
Relevant to future ALS research funding and access to care.
Advocacy
MND Association among UK's top charity research funders
Relevant to researchers monitoring funding opportunities, investment scale and peer-review processes.
AdvocacyMainly relevant to the United Kingdom.
Our campaign features at LGA Conference 2026
Relevant to people seeking faster housing adaptations and Disabled Facilities Grant support
Advocacy
Fuelling the future of MND research
Mainly of interest to researchers tracking early-career networks, collaboration and MND research priorities.
Advocacy
MND EnCouRage UK 2026: celebrating five years of supporting early career researchers
Mainly of interest to researchers interested in early-career collaboration, training and MND research directions.
AdvocacyCommentaryHuman
A journal article warns that consumer AI can misdiagnose ALS
Relevant to clinicians managing AI-mediated self-diagnoses and diagnostic communication.
AdvocacyHuman
Moral distress is common among European healthcare professionals working in motor neuron disease
Relevant to professionals addressing moral distress, burnout and retention in MND care.
AdvocacyMainly relevant to England.
Royal seal of approval for our outstanding volunteers
Relevant to people seeking local MND Association support and community connections
Advocacy
FaTHoM day 2026: Supporting families affected by inherited MND and FTD
Relevant to relatives considering genetic counselling, testing and family support
AdvocacyMainly relevant to England.
Government minister calls for ‘fast track passports’ after Association campaign
Relevant to people seeking faster social-care access, home adaptations and financial support after diagnosis
Advocacy Compass
Clinical trials need to leave the clinic
Mainly of interest to researchers exploring patient-centred, decentralised and subgroup-sensitive trial designs
Advocacy Reporting
MLB, advocacy groups step up to the plate for ALS on annual Lou Gehrig Day
Relevant to seeing public awareness and advocacy for ALS.
AdvocacyCase reportHuman
A case report describes organ retrieval after voluntary assisted dying in a man with end-stage ALS
Relevant to clinicians involved in assisted dying, anaesthesia and organ procurement.
Advocacy Reporting
Drink One for Dane fundraiser returns May 15 to support ALS awareness
Relevant to people interested in ALS awareness and community fundraising.
Advocacy Reporting
ALS Association invests $3M to bring access to care closer to home
Relevant to people seeking more accessible ALS care and support services
Advocacy Reporting
Seeking to harness ‘real momentum’ is goal of this year’s ALS Awareness Month
Relevant to people seeking ALS awareness activities and community engagement.
AdvocacyReviewHuman
Neurology and ALS/MND organizations establish a global partnership
Relevant to clinicians following guideline development, education, capacity building and clinical collaboration.
Advocacy Compass
There’s No Map for This
Relevant to people seeking personalised, timely ALS/MND information and support.
Advocacy Compass
Improving continuity of ALS and MND care: a pilot with MNDA South Africa
Relevant to families currently carrying fragmented care information and coordinating services.
Advocacy
Bringing the community together for the 36th International Symposium on ALS/MND
Covers diverse research themes, collaborations, models, biomarkers and outcome measures
AdvocacyMainly relevant to England.
Inspiring a New Generation of Scientists at New Scientist Live 2025
Relevant to researchers interested in early-career recruitment and public engagement in MND science.
Advocacy
Behind the Scenes of Peer Review
Relevant to researchers seeking insight into MND grant assessment, priorities and collaboration.
Advocacy
Finding Purpose, Building Connections and Expanding Horizons: Reflections from the MND EnCouRage UK Conference
Mainly of interest to researchers following early-career networks and MND research directions.
Advocacy
Celebrating 10 years of our Non-Clinical Fellowships: looking to the present!
Mainly of interest to researchers following MND genetics, fellowships and research careers
Advocacy
Celebrating 10 years of our Non-Clinical Fellowships!
Relevant to researchers interested in fellowship funding, career development and research networks
Advocacy
MND EnCouRage UK 2025: Encouraging the future leaders of MND research
Relevant to researchers interested in early-career development, collaboration and communicating MND research.
Advocacy
MND EnCouRage UK: Looking back at four years of supporting the next generation of MND researchers
Relevant to researchers interested in early-career networks, mentoring and research collaboration
Advocacy
Global MND awareness day: Hidden challenges of MND research
Mainly of interest to researchers following genetic risk, biomarker and early-career research perspectives
Advocacy
Meet Libby, a new member of the Research Team
Describes PhD findings on microRNA changes, cell communication and MND models.
Advocacy
Introducing Katy – one of the newest members of the Research Team
Describes fibroblast-derived brain-cell models, mitochondrial research and high-throughput screening experience.
Advocacy
Celebrating research and collaboration at the 35th International Symposium on ALS/MND
Mainly of interest to researchers following international collaboration, methods and the field’s latest findings.
Advocacy
MND EnCouRage UK: Supporting the future leaders of MND research
Mainly of interest to researchers following early-career development and community-informed trial design
Advocacy
Meet Gen – the latest member of our Research Team
May interest readers tracking MND genetics communication and research engagement.
Advocacy
Reuniting the MND community at the 34th International Symposium on ALS/MND
Mainly of interest to researchers following new mechanisms, biomarkers, trials and collaborations.
Advocacy
Introducing Kiran – The newest member of our Research Team
Introduces a research officer involved in the International Symposium on ALS/MND and research dissemination.
Advocacy
Symposium Preview: Meet the ALS/FTD Plenary Speakers…Part 1
Mainly of interest to researchers tracking ALS-FTD mechanisms, biomarkers and collaborations.
Advocacy
Symposium Preview: Meet the Symposium Communications Ambassadors
Introduces researchers and highlights research areas featured at the international symposium.
From Curalysis
- Clinical trials need to leave the clinic2 months ago
- There’s No Map for This5 months ago
- On the Inside of a Clinical Trial7 months ago
Summarised by Compass using AI from the source material. These are not medical advice. Always read the original source.